The pride and joy I feel for Adam motivated me to form The Autism Acceptance Project and begin a blog titled The Joy Of Autism. Adam, who is now five years old, was diagnosed at eighteen months of age. The word "joy" in our lives isn't just a mantra, it's for real. Despite challenges and hurdles, Adam's affection and affable nature motivates everyone in our family to focus on what quality of life means: in the short time we have on this earth, we try to focus on what is meaningful in our lives. While Adam may never be a "jock," autism doesn't mean that he'll never play hockey.
In the beginning, it wasn't like this. When Adam was diagnosed at eighteen months of age, my husband and I were terrified of autism. It is a universal theme - most of us are unequipped to deal with autism, let alone any disability. Unless borne to a family with disability in it, or if you went to school with disabled children, there is no way to know how to deal with the sudden diagnosis which many refer to as D-Day. Yet, despite the diagnosis, Adam had not changed. The diagnosis simply changed our perception of him and his future.
All I could picture was a son detached from me, rocking in a corner back and forth for the rest of his life. Isn't that what most of the world thinks of autism? A child who is among us, but "not quite with us?" Add to that a very negative portrayal of autism for the sake of creating urgency and generating money and careers parents are offered very little hope and support to move on in life with autism.




Comments
Thanks you so much for your
By Trisha Baptie, May 7, 2007 at 19:42Thanks you so much for your story, i to have an autistic spectrum disorder child and while he has his challenges he is a bundle of fun. I think people's image of autistic children needs to change most children like my son look perfectly normal but at the drop of a hat his behavior and emotional moods can shift which can cause all sorts of behavior challenges. I get all sorts of comments from others who because of what they see make snap judgements about my son, or my parenting which can hurt when they find it necessary to share their thoughts with me. It is truly a hidden disability my hope is that people stop making snap judgement and start using more compassion not only to children like ours but to everyone for we never really know the whole story about what we see, we are only ever seeing a piece of the whole story.
This is an amazing story -
By luyen, May 10, 2007 at 10:26This is an amazing story - really something. I think it says so much about our need to label things as 'problems' and 'solutions' but it doesn't work that way.
You firing therapists really says something about how the approach towards something is more important than the actual results...
I find this "medical" approach all too common, from clinic doctors, to psycho-therapists - there's just missing that element of compassion and understanding. I think that's a huge part of just being human, not to mention helping others feel comfortable.
Really uplifting, thank you for this educational piece.
Thank you for your uplifting
By mcewen, April 30, 2007 at 19:46Thank you for your uplifting and positive account of autism on the last day of Autism Awareness Month. I sincerely hope that people begin to appreciate the hope and love that so many parents have for their autistic children and how their experience widens our understanding for all people on the spectrum.
Best wishes
http://whitterer-autism.blogspot.com