Without going into too many details, I’m the only kid I know who had to take a monstrous fibre tablet ground up in her yogurt and a tablespoon of mineral oil shaken in a cup of apple juice before bed every night, just to keep things moving at a slow and painful grind. You get my drift.
Things only got worse as I grew older. By the time I was 16, my mom was convinced I had an eating disorder. I knew I didn’t have “issues” with my weight or how I looked – I just didn’t like eating because I knew I’d be carrying that food around with me for days (or weeks) at a time! Food just made me feel crappy.
Finally, at age 17, I was diagnosed with Celiac Disease, which is an allergy to gluten (also known as everything yummy). I promptly embarked on a strict gluten-free diet, saying goodbye to normal bread, fluffy semolina pasta and Oreo cookies. My gut started feeling a little better.
Fast forward a few years. I was going through tubs of cortisone cream to relieve a stubborn eczema-like rash, which was spreading like wildfire across my arms, legs and torso. I had been to several skin specialists, who all got mad at me for scratching; they said they couldn’t help because my fingernails had done too much damage to tell exactly what it was. Excuse me, but if you felt like you had just rolled around in poison ivy, you’d friggin’ scratch too!
Eventually, I just stopped using cortisone cream. I was afraid of the long term effects on my skin, so I just suffered through it and another uncomfortable year went by.




Comments
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Robyn Stubbs, March 3, 2008 at 11:36Update: So I did go for my follow up appointment and I did lie. Then I went to Hawaii for a week and ate the really bad stuff that I've been told to avoid for the rest of my life: I chowed down on corn tortilla chips and garlic-saturated salsa, the odd piece of cheese and some other yummy stuff - and man, I was sorry I did! Corn is DEFINITELY BAD for me :)
I have to say, being Celiac isn't so bad after a while. Once you start feeling better, you really don't crave those kinds of foods too often because your body remembers the hell it put you through. Having said that, I would suggest, Heather, that you avoid the Keg at all costs - those steaming baskets of sour dough bread really are the ultimate temptation...
When I was first diagnosed as a teenager, I moped around like you wouldn't believe. It's tough to digest (no pun intended) and you really do need to grieve your loss - I hadn't established a deep relationship with beer yet, so your grieving time may take a little longer ;) Then, as my mom told me with ever so much love, "you need to move on!
Feel free to tap my wealth of gluten-free knowledge anytime ;)
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Heather Wallace, March 3, 2008 at 14:31I guess I can be glad I had my teenage years and twenties to binge on gluten. After all that time it took you to accept the gluten-free life, I can only imagine how hard it was to be restricted even further. I'm surprised you didn't have a Burger King No Whopper Freakout.
Heather
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Heather Wallace, February 25, 2008 at 21:05I visited a naturopath and today I got my results. I'm highly reactive to milk, eggs, peanuts, wheat and gluten, among other things. The doctor used the C-word: Celiac Disease.
Mainstream doctors have brushed me off for years, with one even saying that I'm just getting older and my insides can't function the way they used to. That may be true, even though I'm only 31, but it makes me angry to think that mainstream medicine would have let me believe my intense symptoms were just in my head. Even with bleeding, the mainstream doctor said, "We'll give you a test, but just to make you feel better. It's likely nothing." It makes me really angry to think about it - about the fact our bodies can be screaming that something is wrong, and some doctors can shut you up in a heartbeat.
I'm thrilled to finally have some answers and am just gearing up for the lifestyle/diet change. I have seen how committed Robyn is. I don't plan on sticking to an extreme diet, but will be avoiding the things that have been wreaking havoc on my body for 7 years.
I'm just glad a fellow Gluten-gal can guide me in what I need to avoid.
And so I bid farewell to beer and pizza...
There was a moment in that naturopath's office where I almost started crying, which was so surprising. Referring to a questionnaire I had filled out, he said, "You push yourself so hard you're like a high speed train. But you've got no brakes, and so you're going to come off the tracks."
In that moment, I felt acknowledged and exposed. There is just so much to be said for treating the whole person. When I am ready, I will have to write about the lack of care in the traditional health care system. It's epidemic, and it's time to treat people, not their symptoms.
Heather
Re: Strong To The Finish 'Cuz I Eat My Spinach
By luyen, February 26, 2008 at 09:12I think there's a whole lot to be said about alternative medicines, but there's also a huge huge place for modern medicine, treating symptoms isn't a bad thing, but it's not preventative. Breaking a leg, or having cancer is a symptom that needs to be treated, albeit a comprehensive system to prevent re-occurrence.
An interesting example is that in Tibet, just like China and many parts of Asia, herbal medicine was highly developed, there were elements of science, philosophy and mind, but now in modern times, with motorbikes and car accidents there are things that can't be treated in the same way, compound fractures, concussions and so forth.
I think there are a huge number of environmental factors to look at, as the allergy to peanuts for example is a lot more widespread than before (or diagnosed better?), but obviously something makes us vulnerable to certain foods, like the pigeon in the mine, not just the food themselves...that's what i'm most curious about.
I know what you mean about the traditional health care system, but we have to remember that hospitals and doctors treat entire communities, cities, trauma cases you name it - while they should care, they're probably too overwhelmed to do so. When i lived in a small town of 30,000 growing up, i grew up knowing my family doctor, he'd spend lots of time just chatting and asking how we've been, it was a different experience. Coming to the big city of vancouver, clinics have been a far cry from that experience...but occasionally i'd meet some doctors that are friends, and naturally you get better care. I think as "patients" we can get to know our doctor a bit better, instead of just expecting them to care...that in turn creates a relationship that is more conducive to compassionate health-care!
p.s. so do you have to firmly and absolutely give up everything on the list, or is it something you can strive for?
On that note, I think and I hope you will find a different world of foods that unexplored before, personally i'm really trying to give up some things like fried foods, eating less meat...
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Heather Wallace, February 26, 2008 at 11:14I hear you - there is a place for traditional medicine. Because the system is so stretched, individual doctors are under a lot of pressure. That said, they still owe it to each patient to take their hands off the doorknob and to avoid suggestions that it's "all in your head," which I have heard for 7 years.
Naturopathy doesn't dismiss mainstream medicine, but mainstream medicine (in my experience) does dismiss naturopathy. I've had two physicians tell me they "don't believe in food allergies."
Excuse me???
Yes, I have to be strict about removing those foods from my diet. It may be a pain, but not nearly as painful as my physical symptoms have been...
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Michelle Kenneth, February 26, 2008 at 07:21Oh, Heather...part of me is feeling so sorry for what you've been through. The other part is happy that you found your answers.
I am not a big fan of the American health care system either. I am prone to skin cancer. My last dermatologist who removed three tumors from my back told me that it will recur all throughout my lifetime. They say that it's genetic. A lot of my aunts on my father's mother's side died of skin cancer. We just recently buried my grandfather who died of skin cancer. It seems it skipped my father's generation and went straight to me. I think my brother may be susceptible to it, as well.
I noticed some symptoms and signs when I was in Puerto Rico on vacation and went through the denial phase for several months. When I started getting sick, I knew it was in reaction to the skin cancer. So I knew that I had no choice, but to go to the doctor. I went to a new dermatologist that had access to a hospital. She had one hand on the clipboard and one hand on the doorknob. She basically refused to have more than a 3-minute conversation with me. When I tried to stop her and ask her what was wrong with me, she said that she refused to treat me until she saw my past medical records since I was susceptible to skin cancer. She said that I did indeed have skin cancer cells on my back, but she was refusing to remove them until she saw my file.
In this day and age...and this is America...why can't they enter all this information into a medical database which is shared and only accessible to other doctors in the health care system? If I was dying and needed emergency care, wouldn't it be good to be able to pull up my past medical history in a national computer system to make sure they don't mess up??? Instead of asking me who my past doctor was, etc.
The way I look at it...I'm in their office. I'm paying them to treat me. I know what the treatment is, so they need to do exactly what I'm paying them to do, instead of running out the door.
I still have those cancer cells on my back. I've decided to heal my own body and go the natural route. They say the raw food diet/veganism is one of the surest natural cures to healing your own body. Seems like nature is the cure.
The way I remember my last episode with my bout with skin cancer, I was in stage four. Had I not had those tumors removed, I would have died. After leaving that second dermatologist, I realized they are not about preventive care. They are about reactive care. They only want to treat you when you are almost dead.
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Heather Wallace, February 26, 2008 at 07:27That's really scary Michelle. It's a good thing you are a strong person who demands proper care, but just think of all those "shy" people who just want to believe the reason the doctor doesn't care is because nothing is really wrong.
Everyone has a health care story, and unfortunately most people can speak of negligence. We blame the system, but I think individual doctors really are the key. Luckily there are some out there that care, but they are the exception...
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Michelle Kenneth, February 26, 2008 at 11:05Oh, I know what you mean! My grandfather's skin cancer was dormant for about eight years before it took over his entire body. At ninety, it's very hard for your body to fight. He had the signs a whole year in advance. He attributed it to age, when really it was the cancer that was slowing him down.
My step-dad is also exhibiting the signs of cancer, but he refuses to go to the doctor. I know he has that complete fear of being told that he has cancer. I think he'd rather die not knowing that he was dying of cancer, instead of looking to cure himself.
Eastern medicine is still new to me. I actually started diving into the Asian part of my heritage after I got out of college. I know there are people that swear by acupuncture and ginseng. I'm still trying to find a cure of my own. Every which direction I've turned, it always seems like the answer is not in traditional Western medicine (as far as cures for diseases go...especially cancer). I just seem to be in this complete mindset that I need to start gravitating more towards nature. It's almost an intuitive feeling.
I look at the diets and the health of individuals from Asia and I see a common theme...lots of vegetables, fish and green tea. I could live on a diet like that for the rest of my life, but it's so hard knowing if the fish is actually safe anymore b/c of how polluted our environment is.
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Michelle Kenneth, February 25, 2008 at 16:37Hmmm...I think I'm going to look into this before I completely start embracing the raw food diet (NO PROCESSED FOODS). There are parts of the raw food diet that I do not completely agree with, but I admire the benefits that go along with it.
I'd be interested in hearing what a Naturopathic doctor would have to say.
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Adrienne, February 25, 2008 at 15:31This is really cool,
I'm kinda interested in checking out a naturopathic diet; my brother was on one last year and it really helped him out. Funny story! :)
Re: Strong To The Finish 'Cuz I Eat My Spinach
By luyen, February 25, 2008 at 15:34Hey Adrienne, can you tell me more about your brother's experience...what kind of diet did he go on, did he have any food allergies at the time, what was the motivating factor that is?
I'm really interested too, i have no doubt that i have a fair number of heavy metals and toxins in my body and my environment, while i don't think i'll freak out about it, thank goodness i'm old enough to take some precautionary measures!
Re: Strong To The Finish 'Cuz I Eat My Spinach
By Adrienne, February 25, 2008 at 16:48hey man, of course!
My bro is only 19, but he was kinda sleepy and had headaches a lot, so he got some allergy tests and found that he should aviod sesame, dairy and gluten for a while. He stayed on the diet for maybe three months with the odd relapse, and he said it helped out for the most part.
I know what you mean, every once in a while i get the urge to go detox because i just feel so polluted.
Re: Strong To The Finish 'Cuz I Eat My Spinach
By luyen, February 25, 2008 at 12:00That's a great story Robyn, i mean hey it's your real life...but i don't think you have anything to feel guilty about, you set the bar, and you went for it...it's more of an objective, than a "must attain" kind of goal I'd say.
I've been meaning to change my diet, i don't know if a naturopath is right for me, because i'm probably in huge denial over what i eat, and by and large i feel pretty healthy, but I must admit as I've aged over the last few years, i don't feel quite as strong as I used to be...
Threatening to crush people like grapes, i just can't back those threats up anymore hehe ;-)
I might go see a TCM doctor, a herbal doctor really, a friend of mine is who has chronic fatigue said it's helped her...i definitely think it works, but i also strongly believe in the power of the mind (aka placebo effect)...and sometimes the smallest of tweaks is all it takes, or more succinctly a mental tweak is all it takes.